A. Organizations and Experts
The LCO heard from close to 300 organizations and experts throughout the course of its consultations. The following list includes organizations and experts who:
· provided written submissions to the consultations (10),
· provided practical support to the Fall 2014 Public Consultations (17),
· attended one of the Fall 2014 Focus Groups (over 160)
· attended the Fall 2014 Consultation Forum (35), or
· were interviewed by LCO staff (94).
Some of the organizations and experts listed participated in multiple ways over the course of the project. The LCO would also like to thank all those who commented and asked questions during the LCO’s many presentations on this topic since the inception of this project.
In addition to those listed below, the LCO heard, during its consultations, from several members of the judiciary and a wide range of government officials.
The Advisory Group for this project has been integral to its work. The members of the Advisory Group are listed at the front of this Report.
1. Melanie Abbey, Rights Adviser, Southwest Centre for Forensic Mental Health Care
2. Donna Abbink, Limestone District School Board
3. Teresa Acs, Scotia Private Client Group
4. Laura Addington, BMO Financial Group
5. Advocacy Centre for the Elderly
6. Ann Elise Alexander, CIBC Trust Corporation
7. Alisha Alladina, Toronto Central Community Care Access Centre
8. Dr. Federico Allodi, Psychiatrist
9. Alternative Dispute Resolution Institute
10. Tom Archer, Developmental Services Ontario, Niagara
11. Peggy Armstrong, Grey Flag Campaign
12. Michael Bach, Canadian Association for Community Living
13. David Baker, BakerLaw
14. Jan Barduzzi, Brain Injury Services
15. Deborah Barker, Alzheimer Society of Grey-Bruce
16. Janet Barry, Community Living Kingston and District
17. Sally Bean, Sunnybrook Health Sciences Centre
18. Jennifer Bell, Princess Margaret Cancer Centre
19. Beth Bentley, Ongwanada
20. Joanne Bertrand, Ontario Caregivers Coalition
21. Lise Betteridge, Ontario College of Social Workers and Social Service Workers
22. Dr. Raj Bhatla, Royal Ontario Hospital
23. Sharon Biecks-Hangrow, Westpark Health Care Centre
24. Elizabeth Birchall, Community Outreach Programs in Addictions
25. Carol Blake, Advocate, Providence Care Mental Health Services Kingston
26. Donna Broga, Lee Manor
27. Barbara Bryan, Jarlette Health Services
28. Kelley Bryan, Swadron Associates
29. Katharine Buchan, Autism Society of Ontario
30. Rob Buchanan, Legal Aid Ontario
31. Daniel Buchman, University Health Network
32. Charlotte Bumstead, Grey-Bruce Health Services
33. Chris Burton, RBC Wealth Management Estate and Trust Services
34. Dr. Clarissa Bush, Psychologist, Queensview Professional Services
35. Elaine Calvert, Registered Nurses Association of Ontario
36. Canadian Mental Health Association, Ontario Division, Executive Directors Network
37. Canadian Mental Health Association, Ontario Division, Human Services and Justice Coordinating Committee
38. Paul Cappuccio, Southlake Regional Health Services, ACTT/PACTT, Adult Outpatient Mental Health Services
39. Linda Carey, Advocate, St. Joseph’s Health Care Hamilton
40. Alexandra Carling-Rowland, College of Audiologists and Speech Language Pathologists
41. Dr. Corine Carlisle, Centre for Addiction and Mental Health
42. Elizabeth Carlton, Ontario Hospital Association
43. Danielle Carnegie, Community Living Kingston and District
44. Kelly Caswell, Toronto Central Community Care Access Centre
45. Dr. Patricia Cavanagh, Centre for Addiction and Mental Health
46. Jennifer Chambers, Centre for Addiction and Mental Health, Empowerment Council
47. Dr. Ranjith Chandrasena, The Chatham-Kent Health Alliance
48. Paula Chidwick, William Osler Health Systems
49. Howard Chodos, Mental Health Commission of Canada
50. Bob Clark, Humber River Hospital
51. Georgie Clarke, Concerned Friends of Ontario Citizens in Care Facilities
52. John Clegg, Scotia Private Client Group
53. Coalition on Alternatives to Guardianship
54. Audrey Cole (advocate)
55. Barbara Collier, Communications Disabilities Access Canada
56. Nancy Cooper, Ontario Long-term Care Association
57. Barry Corbin, Corbin Estate Law Professional Coorporation
58. Jacques Côté, Barrister and Solicitor
59. Johanne Curodeau, Association pour l’integration sociale d’Ottawa
60. Eyitayo Dada, Barrister and Solicitor
61. Margaret Dain, Rights Adviser, Providence Care Mental Health Services Kingston
62. Carol Dalgado, CIBC Trust Corporation
63. Dr. Christopher De Bono, Toronto Central Community Care Access Centre
64. Pauline Diemert , Alzheimer Society Grey Bruce
65. Cathy DiFonte, Advocate, Waypoint Centre for Mental Health Care, Penetanguishene
66. Cynthia Dillon, Rights Adviser, Brockville Mental Health Centre
67. Lisa Douris, SRT Medstaff
68. Robin Rundle Drake, Advocate, Regional Mental Health Care London
69. Diane Dyson, WoodGreen Community Services
70. Dawn Eccles, Registered Nurse
71. Dr. Virginia Edwards, Psychiatrist
72. Duncan Embury, Neinstein & Associates
73. Orville Endicott, Community Living Ontario
74. Maureen Etkin, Elder Abuse Ontario
75. Phyllis Fabra, Rights Adviser, Centre for Addiction and Mental Health
76. Donna Fairley, Ontario Association of Residents Councils
77. Guy Farrell, Farrell Law Group
78. Dian Ferguson, CIBC Asset Management
79. Dr. Ian Ferguson, Providence Health Care
80. Anne Marie Fitzgerald, Ontario Works
81. Elana Fleischman, Social Justice Tribunals Ontario
82. Dr. Russell Fleming, Waypoint Centre for Mental Health Care
83. Dr. Jennifer Fogarty, Psychologist, St. Joseph Healthcare London
84. Dr. Jane Fogolin, Thunder Bay Regional Health Sciences Centre
85. Angie Fong, BMO Harris Private Banking
86. Andrea Foti, College of Physicians and Surgeons of Ontario
87. Cristel Francis, Barrister and Solicitor
88. Beth French, Brockville and District Association for Community Involvement
89. Ryan Fritsch, Legal Aid Ontario
90. Antonio Gallo, Joint Centre for Bioethics
91. Nimali Gamage, Goddard, Gamage and Stephens LLP
92. Meryl Zisman Gary, BakerLaw
93. Dr. Rose Geist, Trillium Health Centre
94. Dr. Maggie Gibson, Psychologist, St. Joseph Healthcare London
95. Dr. Joan Gilmour, Osgoode Hall Law School
96. Jan Goddard, Goddard, Gamage and Stephens
97. Dianne Godkin, Trillium Health Partners
98. Gabriella Golea, Centre for Addiction and Mental Health
99. Bruce Graham, WoodGreen Community Services
100. Angela Grant, Advocate, Centre for Addiction and Mental Health
101. Dr. Adrian Grek, Mount Sinai Hospital & University of Toronto
102. Tom Groziner, RBC Wealth Management Estate and Trust Services
103. Michelle Hagar, Ontario Works
104. Professor Margaret Hall, Thompson Rivers University
105. Dr. Karen Hand, London Psychiatric Hospital
106. Mark Handelman, Whaley Estate Litigation
107. Professor Lynne Hanson, Queen’s University Law School
108. Louise Hanvey, Canadian Hospice Palliative Care Association
109. David Harvey, Alzheimer Society of Ontario
110. Alice Haveman, Counselling Services of Belleville and District
111. Ann Hester, Joint Centre for Bioethics
112. Rick Hill, Community Living Owen Sound and District
113. Ann Hilliard, Centre for Addiction and Mental Health
114. D’Arcy Hiltz, Hiltz LLP
115. Sandra Hood, Alzheimer Society Grey Bruce
116. Leah Hood, Grey-Bruce Health Services
117. Tracy Howell, PACE Independent Living
118. Elizabeth Hughes, Advocate, Brockville Mental Health Centre
119. Kimberley Ibarra, Joint Centre for Bioethics
120. Krista James, Canadian Centre for Elder Law
121. Colleen Kelly Jensen, Community Living Kingston and District
122. Danielle Joel, Borden Ladner Gervais
123. Kerri Joffe, ARCH Disability Law Centre
124. Deborah Johnston, Chartwell Seniors Housing
125. Carolyn Jones, Barrister and Solicitor
126. Michelle Jorge, Jewell, Radimisis Jorge
127. Horace Joseph, ARCH Disability Law Centre
128. Daria Kagan, Kagan Law Firm
129. Ellen Kampf, Ontario College of Social Workers and Social Service Workers
130. Anya Kater, Ontario Human Rights Commission
131. Teri Kay, Ontario Network for the Prevention of Elder Abuse
132. Lana Kerzner, Barrister and Solicitor
133. Nabila Khan, ARCH Disability Law Centre
134. Reema Khawja, Ontario Human Rights Commission
135. Christa Korens, Centre for Addiction and Mental Health
136. Julian Kusek, Advocate, Waypoint Centre for Mental Health Care, Penetanguishene
137. Gordon Kyle, Community Living Ontario
138. Hilary Laidlaw, McCarthy Tétrault LLP
139. Liz Laird, Palliative Pain and Symptom Management Consultation Program Southwestern Ontario
140. Alastair Lamb, Ongwanada
141. Margaret Lambert, Upper Canada Lodge, Long Term Care Home
142. Dr. Larry Leach, Psychologist, Baycrest
143. Dee Lender, Ontario Association of Residents Councils
144. Nina Lester, Barrister and Solicitor
145. Brian Loza, BMO Mutual Funds
146. Dr. Lynn MacDonald, National Initiative for the Care of the Elderly
147. Jane Mackenzie, Rights Adviser, Lakehead Psychiatric Hospital
148. Faith Malcolm, Rights Adviser, Ontario Shores Centre for Mental Health Sciences
149. Gary Malkowski, Canadian Hearing Society
150. Lisa Manuel, Family Service Toronto
151. Chrystal Marshall, Rights Adviser, North Bay Regional Health Centre
152. Andrée-Anne Martel, Association des jurists d’expression francaise de l’Ontario
153. Nyranne Martin, Centre for Addiction and Mental Health
154. Paul McGarvey, Extend a Family Kingston
155. Sally McMackin, Toronto Central Community Care Access Centre
156. Elizabeth McNab, Ontario Coalition (Society) of Senior Citizen’s Organizations
157. Jane Meadus, Advocacy Centre for the Elderly
158. Douglas Melville, Ombudsman for Banking Services and Investments
159. Mental Health Legal Committee
160. Isfahan Merali, Consent and Capacity Board
161. Estrella Mercurio, ParaMed Home Health Care-Toronto Central
162. Suzanne Michaud, Royal Bank of Canada
163. Audrey Miller, Elder Caring
164. Anita Miller, Preferred Health Care Services
165. Edgar-Andre Montigny, ARCH Disability Law Centre
166. Dr. Elizabeth Moore, Psychologist, Providence Health Care
167. Dr. Rick Morris, College of Psychologists of Ontario
168. Katherine Mortimer, Ontario Seniors Secretariat
169. Rikin Morzaria, McLeish Orlando
170. Patricia Muldowney-Brook, Muldowney-Brooks Mediation Services
171. Kendra Naidoo, Centre for Addiction and Mental Health
172. Northumberland Community Legal Centre
173. Jordan Oelbaum, Schnurr Kirsh Schnurr Oelbaum Tator
174. Roy O’Leary, Investors Group Trust
175. Catherine Olsiak, SimpsonWigle Law LLP
176. Ontario Brain Injury Association
177. Robyn Ord, Toronto Central Community Care Access Centre
178. Mr. Justice Edward Ormston, Consent and Capacity Board
179. Diane Parsons, Barrister and Solicitor
180. Stanley Pasternak, Law Offices of Stanley Pasternak
181. Ruth Patterson, York Durham Aphasia Centre
182. Lora Patton, York University, Consent and Capacity Board
183. Professor Patricia Peppin, Queen’s University Law School
184. Mercedes Peres, Mental Health Law Committee
185. Ivana Petricone, ARCH Disability Law Centre
186. Kathryn Pilkington, Ontario Association of Non-Profit Homes and Services for Seniors
187. Jeff Poirier, Ontario Human Rights Commission
188. Brendon Pooran, Barrister and Solicitor
189. Jennifer Pothier, Niagara North Legal Clinic
190. Steacey Powell, Community Living Kingston and District
191. Lisa Priolo, Advocate, Centre for Addiction and Mental Health
192. Alexander Procope, Swadron Associates
193. Lorraine Purdon, Association of Family Councils
194. Sally Qi, Community Ethics Network
195. Archie Rabinowitz, Dentons Canada LLP
196. Steve Rastin, Rastin & Associates
197. Kevin Reel, Centre for Addiction and Mental Health
198. Anne Reynolds, BMO Harris Private Banking
199. Gail Riihimaki, Community Care Access Centre, Niagara Region
200. Margaret Rintoul, Blaney McMurtry LLP
201. Dr. Marcia Rioux, York University
202. Cherie Robertson, Ontario Human Rights Commission
203. Allan Rouben, Barrister and Solicitor
204. Carol Rudel, Seniors Community Programs, Niagara Region
205. Nancy Rushford, Alzheimer Society, Niagara Region
206. Barbara Russell, Centre for Addiction and Mental Health
207. Anna Ruto, Toronto Central Community Care Access Centre
208. Deb Ryckman, Community Living North Frontenac
209. Sheri Scott, Community Living Kingston and District
210. Greg Shaw, International Federation on Ageing
211. Jenny Shickluna, Niagara Region Seniors Services
212. Roslyn Shields, Centre for Addiction and Mental Health
213. Dr. Gerald Shugar, Centre for Mental Health and Addiction
214. Doreen Simenov, Canadian Mental Health Association
215. Ruth Sommers, St. Joseph’s Health Care Hamilton
216. Dean Lorne Sossin, Osgoode Hall Law School
217. Margaret Spoelstra, Autism Ontario
218. Peter Sproul, Community Living Kingston and District
219. Wade Stevenson, Rights Adviser, Waypoint Centre for Mental Health Care, Penetanguishene
220. Ebony St. Rose, Centre for Addiction and Mental Health
221. Laurel Stroz , Toronto Central Community Care Access Centre
222. Stanley Stylianos, Psychiatric Patient Advocacy Office
223. Myra Sugar, Kerry’s Place
224. Professor Doug Surtees, University of Saskatchewan College of Law
225. Marshall Swadron, Swadron Associates
226. Georgia Swan, HGR Graham Partners LLP
227. Irina Sytcheva, Schizophrenia Society
228. Anita Szigeti, Anita Szigeti Advocates
229. Shaheynoor Talukder, Barrister and Solicitor
230. Marie Taylor, Advocate, Ontario Shores Centre for Mental Health Sciences
231. Kim Thompson, Rights Adviser, Regional Mental Health Care London
232. Rachel Thomson, Community Care Access Centre Southwest
233. Dr. Michele Tremblay, Northern Ontario Francophone Psychiatric Program
234. Matthew Trennum, Privacy by Design, Niagara Region
235. Kate Tschakovsky, Centre for Addiction and Mental Health
236. Tom Turner, Developmental Services of Leeds and Grenville
237. Mary Beth Valentine, Retirement Homes Regulatory Authority
238. Frank Wagner, Joint Centre for Bioethics
239. Judith Wahl, Advocacy Centre for the Elderly
240. Professor Shirley Wales, Humber College
241. Dean Walsh, Community Living North Frontenac
242. Laura Watts, Canadian Centre for Elder Law
243. Graham Webb , Advocacy Centre for the Elderly
244. Joanna Weiss, Anita Szigeti Advocates
245. Kimberly Whaley, Whaley Estate Litigation
246. Carla Whillier, Barrister and Solicitor
247. Krista Whittard, Niagara Region Mental Health
248. Ruth Wilcock, Ontario Brain Injury Association
249. Kim Wilson, Canadian Coalition for Seniors Mental Health
250. Dianne Wintermute, ARCH Disability Law Centre
251. Christine Wray, Toronto Central Community Care Access Centre
252. David Wright, Human Rights Tribunal of Ontario
253. Anna Zachariah , Ontario Coalition (Society) of Senior Citizen’s Organizations
254. Joanna Zymont, Centre for Addiction and Mental Health
B. Private Individuals
In accordance with our mandate, and reflecting the nature of this project, the LCO made efforts throughout to not only make participation accessible to individual older adults, but to actively encourage their participation.
The LCO received input from over 300 individuals over the course of this project. This includes:
· 212 responses to the survey questionnaires: 109 from individuals directly affected and 103 from persons providing decision-making assistance,
· close to 100 individuals participating in the LCO’s eleven focus groups for persons directly affected or family members,
· several formal interviews conducted by LCO staff,
· several individuals who contacted us via phone calls, emails, written submissions or online comments.
In accordance with the LCO’s Privacy Policy, the names of contributing individuals are not listed here. However, the participation of these individuals fundamentally shaped this project throughout, and the LCO wishes to express our gratitude to them for sharing their expertise and experiences with us.
C. Commissioned Research Papers
The LCO issues a call of the preparation of research papers in particular subjects relevant to a project. It relies on these papers in the same way as any research. The papers do not necessarily reflect the LCO’s views.
Advocacy Centre for the Elderly and Dykeman Dewhirst O’Brien LLP: Health Care Consent and Advance Care Planning: Standards and Supports, online at: http://lco-cdo.org/en/capacity-guardianship-commissioned-paper-ace-ddo.
ARCH Disability Law Centre: Decisions, Decisions: Promoting And Protecting The Rights Of Persons With Disabilities Who Are Subject To Guardianship, online at: http://lco-cdo.org/en/capacity-guardianship-commissioned-paper-arch.
Canadian Centre for Elder Law: Understanding the Lived Experience of Assisted and Supported Decision-making in Canada, online at: http://lco-cdo.org/en/capacity-guardianship-commissioned-paper-ccel.
Dr. Bonnie Lashewicz: Understanding and Addressing Voices of Adults with Disabilities Within Their Family Caregiving Contexts: Implications for Legal Capacity, Decision-making and Guardians online: http://lco-cdo.org/en/capacity-guardianship-commissioned-paper-lashewicz.
The following papers were also of assistance to the LCO:
Dr. Vahe Kehyayan and Dr. John P. Hirdes: Socio-Demographic, Clinical and Functional Characteristics of Persons Lacking Legal Capacity Across the Continuum of Health Care Settings in Ontario, Interim Paper, November 2013, unpublished.
Lana Kerzner and Michael Bach: Fulfilling the Promise: ‘Alternative Courses of Action’ under the Substitute Decisions Act, Interim Paper, March 2014, unpublished.
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