ORGANIZATIONS AND INDIVIDUALS CONTRIBUTING TO THE PROJECT

The Advisory Group for this project has been integral to its work. The members of the Advisory Group are listed at the front of this Report.

During the course of its consultations, the LCO heard from well over 300 organizations and experts. The following list includes organizations and experts who:

  • provided written submissions to the consultations, some at multiple stages of the project (32),
  • provided practical support to the Fall 2014 Public Consultations (17),
  • attended one of the Focus Groups following the release of the Discussion Paper (over 170)
  • attended one of the Focus Groups following the release of the Interim Report (35)
  • attended the Fall 2014 Consultation Forum (35), or
  • were interviewed by LCO staff (98).

Some of the organizations and experts listed participated in multiple ways over the course of the project. The LCO would also like to thank all those who commented and asked questions during the LCO’s many presentations on this topic since the inception of this project.

In addition to those listed below, the LCO heard, during its consultations, from several members of the judiciary and a wide range of government officials.

  1. Melanie Abbey, Rights Adviser, Southwest Centre for Forensic Mental Health Care
  2. Donna Abbink, Limestone District School Board
  3. Teresa Acs, Scotia Private Client Group
  4. Laura Addington, BMO Financial Group
  5. Adult Protective Service Association of Ontario
  6. Advocacy Centre for the Elderly
  7. Ann Elise Alexander, CIBC Trust Corporation
  8. Alisha Alladina, Toronto Central Community Care Access Centre
  9. Dr. Federico Allodi, Psychiatrist
  10. Alternative Dispute Resolution Institute
  11. Alzheimer Society of Ontario
  12. Tom Archer, Developmental Services Ontario, Niagara
  13. Peggy Armstrong, Grey Flag Campaign
  14. Michael Bach, Canadian Association for Community Living
  15. David Baker, BakerLaw
  16. Jan Barduzzi, Brain Injury Services
  17. Deborah Barker, Alzheimer Society of Grey-Bruce
  18. Janet Barry, Community Living Kingston and District
  19. Sally Bean, Sunnybrook Health Sciences Centre
  20. Jennifer Bell, Princess Margaret Cancer Centre
  21. Beth Bentley, Ongwanada
  22. Joanne Bertrand, Ontario Caregivers Coalition
  23. Lise Betteridge, College of Social Workers
  24. Dr. Raj Bhatla, Royal Ottawa Hospital
  25. Sharon Biecks-Hangrow, Westpark Health Care Centre
  26. Elizabeth Birchall, Community Outreach Programs in Addictions
  27. Carol Blake, Advocate, Providence Care Mental Health Services Kingston
  28. Donna Broga, Lee Manor
  29. Barbara Bryan, Jarlette Health Services
  30. Kelley Bryan, Swadron Associates
  31. Katharine Buchan, Autism Society of Ontario
  32. Rob Buchanan, Legal Aid Ontario
  33. Daniel Buchman, University Health Network
  34. Clare Burns, Weir Foulds LLP
  35. Charlotte Bumstead, Grey-Bruce Health Services
  36. Chris Burton, RBC Wealth Management Estate and Trust Services
  37. Dr. Clarissa Bush, Psychologist, Queensview Professional Services
  38. Elaine Calvert, Registered Nurses Association of Ontario
  39. Canadian Bankers Association
  40. Canadian Mental Health Association, Ontario Division, Executive Directors Network
  41. Canadian Mental Health Association, Ontario Division, Human Services and Justice Coordinating Committee
  42. Paul Cappuccio, Southlake Regional Health Services, ACTT/PACTT, Adult Outpatient Mental Health Services
  43. Linda Carey, Advocate, St. Joseph’s Health Care Hamilton
  44. Alexandra Carling-Rowland, College of Audiologists and Speech Language Pathologists
  45. Dr. Corine Carlisle, Centre for Addiction and Mental Health
  46. Elizabeth Carlton, Ontario Hospital Association
  47. Danielle Carnegie, Community Living Kingston and District
  48. Angela Casey, de Vries Litigation
  49. Kelly Caswell, Toronto Central Community Care Access Centre
  50. Dr. Patricia Cavanagh, Centre for Addiction and Mental Health
  51. Jennifer Chambers, Centre for Addiction and Mental Health, Empowerment Council
  52. Dr. Ranjith Chandrasena, The Chatham-Kent Health Alliance
  53. Paula Chidwick, William Osler Health Systems
  54. Howard Chodos, Mental Health Commission of Canada
  55. Christian Horizons
  56. Bob Clark, Humber River Hospital
  57. Georgie Clarke, Concerned Friends of Ontario Citizens in Care Facilities
  58. John Clegg, Scotia Private Client Group
  59. Coalition on Alternatives to Guardianship
  60. Audrey Cole (advocate)
  61. College of Audiologists and Speech Language Pathologists of Ontario
  62. Barbara Collier, Communications Disabilities Access Canada
  63. Communication Disabilities Access Canada
  64. Nancy Cooper, Ontario Long-term Care Association
  65. Barry Corbin, Corbin Estate Law Professional Corporation
  66. Jacques Côté, Barrister and Solicitor
  67. Johanne Curodeau, Association pour l’integration sociale d’Ottawa
  68. Eyitayo Dada, Barrister and Solicitor
  69. Margaret Dain, Rights Adviser, Providence Care Mental Health Services Kingston
  70. Carol Dalgado, CIBC Trust Corporation
  71. Dr. Christopher De Bono, Toronto Central Community Care Access Centre
  72. Pauline Diemert , Alzheimer Society Grey Bruce
  73. Cathy DiFonte, Advocate, Waypoint Centre for Mental Health Care, Penetanguishene
  74. Cynthia Dillon, Rights Adviser, Brockville Mental Health Centre
  75. Lisa Douris, SRT Medstaff
  76. Robin Rundle Drake, Advocate, Regional Mental Health Care London
  77. Diane Dyson, WoodGreen Community Services
  78. Dawn Eccles, Registered Nurse
  79. Dr. Virginia Edwards, Psychiatrist
  80. Elder Abuse Ontario
  81. Duncan Embury, Neinstein & Associates
  82. Orville Endicott, Community Living Ontario
  83. Maureen Etkin, Elder Abuse Ontario
  84. Phyllis Fabra, Rights Adviser, Centre for Addiction and Mental Health
  85. Donna Fairley, Ontario Association of Residents Councils
  86. Family Dispute Resolution Institute of Ontario
  87. Guy Farrell, Farrell Law Group
  88. Dian Ferguson, CIBC Asset Management
  89. Dr. Ian Ferguson, Providence Health Care
  90. Anne Marie Fitzgerald, Ontario Works
  91. Elana Fleischman, Social Justice Tribunals Ontario
  92. Dr. Russell Fleming, Waypoint Centre for Mental Health Care
  93. Dr. Jennifer Fogarty, Psychologist, St. Joseph Healthcare London
  94. Dr. Jane Fogolin, Thunder Bay Regional Health Sciences Centre
  95. Angie Fong, BMO Harris Private Banking
  96. Andrea Foti, College of Physicians and Surgeons of Ontario
  97. Cristel Francis, Barrister and Solicitor
  98. Beth French, Brockville and District Association for Community Involvement
  99. Ryan Fritsch, Legal Aid Ontario
  100. Antonio Gallo, Joint Centre for Bioethics
  101. Nimali Gamage, Goddard, Gamage and Stephens LLP
  102. Meryl Zisman Gary, BakerLaw
  103. Dr. Rose Geist, Trillium Health Centre
  104. Dr. Maggie Gibson, Psychologist, St. Joseph Healthcare London
  105. Dr. Joan Gilmour, Osgoode Hall Law School
  106. Jan Goddard, Goddard, Gamage and Stephens
  107. Dianne Godkin, Trillium Health Partners
  108. Gabriella Golea, Centre for Addiction and Mental Health
  109. Bruce Graham, WoodGreen Community Services
  110. Angela Grant, Advocate, Centre for Addiction and Mental Health
  111. Dr. Adrian Grek, Mount Sinai Hospital & University of Toronto
  112. Tom Groziner, RBC Wealth Management Estate and Trust Services
  113. Michelle Hagar, Ontario Works
  114. Professor Margaret Hall, Thompson Rivers University
  115. Dr. Karen Hand, London Psychiatric Hospital
  116. Mark Handelman, Whaley Estate Litigation
  117. Professor Lynne Hanson, Queen’s University Law School
  118. Louise Hanvey, Canadian Hospice Palliative Care Association
  119. David Harvey, Alzheimer Society of Ontario
  120. Alice Haveman, Counselling Services of Belleville and District
  121. Ann Hester, Joint Centre for Bioethics
  122. Rick Hill, Community Living Owen Sound and District
  123. Ann Hilliard, Centre for Addiction and Mental Health
  124. D’Arcy Hiltz, Hiltz LLO
  125. Sandra Hood, Alzheimer Society Grey Bruce
  126. Leah Hood, Grey-Bruce Health Services
  127. Tracy Howell, PACE Independent Living
  128. Elizabeth Hughes, Advocate, Brockville Mental Health Centre
  129. Kimberley Ibarra, Joint Centre for Bioethics
  130. Krista James, Canadian Centre for Elder Law
  131. Colleen Kelly Jensen, Community Living Kingston and District
  132. Danielle Joel, Borden Ladner Gervais
  133. Kerri Joffe, ARCH Disability Law Centre
  134. Deborah Johnston, Chartwell Seniors Housing
  135. Carolyn Jones, Barrister and Solicitor
  136. Michelle Jorge, Jewell, Radimisis Jorge
  137. Horace Joseph, ARCH Disability Law Centre
  138. Daria Kagan, Kagan Law Firm
  139. Ellen Kampf, College of Social Workers
  140. Anya Kater, Ontario Human Rights Commission
  141. Teri Kay, Ontario Network for the Prevention of Elder Abuse
  142. Lana Kerzner, Barrister and Solicitor
  143. Nabila Khan, ARCH Disability Law Centre
  144. Reema Khawja, Ontario Human Rights Commission
  145. Christa Korens, Centre for Addiction and Mental Health
  146. Julian Kusek, Advocate, Waypoint Centre for Mental Health Care, Penetanguishene
  147. Gordon Kyle, Community Living Ontario
  148. Hilary Laidlaw, McCarthy Tétrault LLP
  149. Liz Laird, Palliative Pain and Symptom Management Consultation Program Southwestern Ontario
  150. Alastair Lamb, Ongwanada
  151. Margaret Lambert, Upper Canada Lodge, Long Term Care Home
  152. Dr. Larry Leach, Psychologist, Baycrest
  153. Dee Lender, Ontario Association of Residents Councils
  154. Nina Lester, Barrister and Solicitor
  155. Brian Loza, BMO Mutual Funds
  156. Dr. Lynn MacDonald, National Initiative for the Care of the Elderly
  157. Jane Mackenzie, Rights Adviser, Lakehead Psychiatric Hospital
  158. Faith Malcolm, Rights Adviser, Ontario Shores Centre for Mental Health Sciences
  159. Gary Malkowski, Canadian Hearing Society
  160. Lisa Manuel, Family Service Toronto
  161. Chrystal Marshall, Rights Adviser, North Bay Regional Health Centre
  162. Andrée-Anne Martel, Association des jurists d’expression francaise de l’Ontario
  163. Nyranne Martin, Centre for Addiction and Mental Health
  164. Paul McGarvey, Extend a Family Kingston
  165. Sally McMackin, Toronto Central Community Care Access Centre
  166. Elizabeth McNab, Ontario Coalition (Society) of Senior Citizens’ Organizations
  167. Jane Meadus, Advocacy Centre for the Elderly
  168. Douglas Melville, Ombudsman for Banking Services and Investments
  169. Mental Health Legal Committee
  170. Isfahan Merali, Consent and Capacity Board
  171. Estrella Mercurio, ParaMed Home Health Care-Toronto Central
  172. Suzanne Michaud, Royal Bank of Canada
  173. Audrey Miller, Elder Caring
  174. Anita Miller, Preferred Health Care Services
  175. Ministry of Community and Social Services Partnership Roundtable
  176. Edgar-Andre Montigny, ARCH Disability Law Centre
  177. Dr. Elizabeth Moore, Psychologist, Providence Health Care
  178. Dr. Rick Morris, College of Psychologists
  179. Katherine Mortimer, Ontario Seniors Secretariat
  180. Rikin Morzaria, McLeish Orlando
  181. Patricia Muldowney-Brook, Muldowney-Brooks Mediation Services
  182. Kendra Naidoo, Centre for Addiction and Mental Health
  183. Northumberland Community Legal Centre
  184. Jordan Oelbaum, Schnurr Kirsh Schnurr Oelbaum Tator
  185. Roy O’Leary, Investors Group Trust
  186. Catherine Olsiak, SimpsonWigle Law LLP
  187. Ontario Brain Injury Association
  188. Ontario Caregiver Coalition
  189. Robyn Ord, Toronto Central Community Care Access Centre
  190. Mr. Justice Edward Ormston, Consent and Capacity Board
  191. Margaret O’Sullivan, O’Sullivan Estate Lawyers
  192. Diane Parsons, Barrister and Solicitor
  193. Stanley Pasternak, Law Offices of Stanley Pasternak
  194. Ruth Patterson, York Durham Aphasia Centre
  195. Lora Patton, York University, Consent and Capacity Board
  196. Professor Patricia Peppin, Queen’s University Law School
  197. Mercedes Peres, Mental Health Law Committee
  198. Ivana Petricone, ARCH Disability Law Centre
  199. Kathryn Pilkington, Ontario Association of Non-Profit Homes and Services for Seniors
  200. Jeff Poirier, Ontario Human Rights Commission
  201. Brendon Pooran, Barrister and Solicitor
  202. Suzana Popovic-Montag, Hull & Hull LLP
  203. Jennifer Pothier, Niagara North Legal Clinic
  204. Steacey Powell, Community Living Kingston and District
  205. Lisa Priolo, Advocate, Centre for Addiction and Mental Health
  206. Alexander Procope, Swadron Associates
  207. Lorraine Purdon, Association of Family Councils
  208. Sally Qi, Community Ethics Network
  209. Archie Rabinowitz, Dentons Canada LLP
  210. Steve Rastin, Rastin & Associates
  211. Kevin Reel, Centre for Addiction and Mental Health
  212. Anne Reynolds, BMO Harris Private Banking
  213. Gail Riihimaki, Community Care Access Centre, Niagara Region
  214. Margaret Rintoul, Blaney McMurtry LLP
  215. Dr. Marcia Rioux, York University
  216. Cherie Robertson, Ontario Human Rights Commission
  217. Allan Rouben, Barrister and Solicitor
  218. Royal College of Dental Surgeons of Ontario
  219. Carol Rudel, Seniors Community Programs, Niagara Region
  220. Nancy Rushford, Alzheimer Society, Niagara Region
  221. Barbara Russell, Centre for Addiction and Mental Health
  222. Anna Ruto, Toronto Central Community Care Access Centre
  223. Deb Ryckman, Community Living North Frontenac
  224. Sheri Scott, Community Living Kingston and District
  225. Greg Shaw, International Federation on Ageing
  226. Jenny Shickluna, Niagara Region Seniors Services
  227. Roslyn Shields, Centre for Addiction and Mental Health
  228. Dr. Gerald Shugar, Centre for Mental Health and Addiction
  229. Doreen Simenov, Canadian Mental Health Association
  230. Ruth Sommers, St. Joseph’s Health Care Hamilton
  231. Dean Lorne Sossin, Osgoode Hall Law School
  232. Margaret Spoelstra, Autism Ontario
  233. Peter Sproul, Community Living Kingston and District
  234. Wade Stevenson, Rights Adviser, Waypoint Centre for Mental Health Care, Penetanguishene
  235. Ebony St. Rose, Centre for Addiction and Mental Health
  236. Laurel Stroz , Toronto Central Community Care Access Centre
  237. Stanley Stylianos, Psychiatric Patient Advocacy Office
  238. Myra Sugar, Kerry’s Place
  239. Professor Doug Surtees, University of Saskatchewan College of Law
  240. Marshall Swadron, Swadron Associates
  241. Georgia Swan, HGR Graham Partners LLP
  242. Irina Sytcheva, Schizophrenia Society
  243. Anita Szigeti, Anita Szigeti Advocates
  244. Shaheynoor Talukdar, Barrister and Solicitor
  245. Marie Taylor, Advocate, Ontario Shores Centre for Mental Health Sciences
  246. Kim Thompson, Rights Adviser, Regional Mental Health Care London
  247. Rachel Thomson, Community Care Access Centre Southwest
  248. Dr. Michele Tremblay, Northern Ontario Francophone Psychiatric Program
  249. Matthew Trennum, Niagara Region
  250. Kate Tschakovsky, Centre for Addiction and Mental Health
  251. Tom Turner, Developmental Services, Leeds-Granville
  252. Mary Beth Valentine, Retirement Homes Regulatory Authority
  253. Frank Wagner, Joint Centre for Bio-ethics
  254. Judith Wahl, Advocacy Centre for the Elderly
  255. Professor Shirley Wales, Humber College
  256. Dean Walsh, Community Living North Frontenac
  257. Laura Watts, Canadian Centre for Elder Law
  258. Graham Webb , Advocacy Centre for the Elderly
  259. Corinna Weigl, Fasken Martineau DuMoulin LLP
  260. Joanna Weiss, Anita Szigeti Advocates
  261. Kimberly Whaley, Whaley Estate Litigation
  262. Carla Whillier, Barrister and Solicitor
  263. Krista Whittard, Niagara Region Mental Health
  264. Ruth Wilcock, Ontario Brain Injury Association
  265. Kim Wilson, Canadian Coalition for Seniors Mental Health
  266. Dianne Wintermute, ARCH Disability Law Centre
  267. Christine Wray, Toronto Central Community Care Access Centre
  268. David Wright, Human Rights Tribunal of Ontario
  269. Anna Zachariah , Ontario Coalition (Society) of Senior Citizen’s Organizations
  270. Joanna Zymont, Centre for Addiction and Mental Health

Private Individuals

In accordance with our mandate, and reflecting the nature of this project, the LCO made efforts throughout to not only make participation accessible to individuals directly affected by this area of the law and their family members, but to actively encourage their participation.

The LCO received input from over 300 individuals over the course of this project. This includes:

  • 212 responses to the survey questionnaires: 109 from individuals directly affected and 103 from persons providing decision-making assistance,
  • close to 100 individuals participating in the LCO’s eleven focus groups for persons directly affected or family members,
  • several formal interviews conducted by LCO staff,
  • several individuals who contacted us via phone calls, emails, written submissions or online comment

In accordance with the LCO’s Privacy Policy, the names of contributing individuals are not listed here. However, the participation of these individuals fundamentally shaped this project throughout, and the LCO wishes to express our gratitude to them for sharing their expertise and experiences with us.

Commissioned Research Papers

The LCO issues a call of the preparation of research papers in particular subjects relevant to a project. It relies on these papers in the same way as any research. The papers do not necessarily reflect the LCO’s views.

Advocacy Centre for the Elderly and Dykeman Dewhirst O’Brien LLP: Health Care Consent and Advance Care Planning: Standards and Supports, online at: LINK

ARCH Disability Law Centre: Decisions, Decisions: Promoting And Protecting The Rights Of Persons With Disabilities Who Are Subject To Guardianship, online at: LINK

Canadian Centre for Elder Law: Understanding the Lived Experience of Assisted and Supported Decision-making in Canada, online at: LINK

Dr. Bonnie Lashewicz: Understanding and Addressing Voices of Adults with Disabilities Within Their Family Caregiving Contexts: Implications for Legal Capacity, Decision-making and Guardians online: LINK

The following papers were also of assistance to the LCO:

Dr. Vahe Kehyayan and Dr. John P. Hirdes: Socio-Demographic, Clinical and Functional Characteristics of Persons Lacking Legal Capacity Across the Continuum of Health Care Settings in Ontario, Interim Paper, November 2013, unpublished

Lana Kerzner and Michael Bach: Fulfilling the Promise: ‘Alternative Courses of Action’ under the Substitute Decisions Act, Interim Paper, March 2014, unpublished.