A.    Organizations and Experts

 The LCO heard from close to 300 organizations and experts throughout the course of its consultations. The following list includes organizations and experts who:

·       provided written submissions to the consultations (10),

·       provided practical support to the Fall 2014 Public Consultations (17),

·       attended one of the Fall 2014 Focus Groups (over 160)

·       attended the Fall 2014 Consultation Forum (35), or

·       were interviewed by LCO staff (94).

Some of the organizations and experts listed participated in multiple ways over the course of the project. The LCO would also like to thank all those who commented and asked questions during the LCO’s many presentations on this topic since the inception of this project.

In addition to those listed below, the LCO heard, during its consultations, from several members of the judiciary and a wide range of government officials.

The Advisory Group for this project has been integral to its work. The members of the Advisory Group are listed at the front of this Report.

1.      Melanie Abbey, Rights Adviser, Southwest Centre for Forensic Mental Health Care

2.      Donna Abbink, Limestone District School Board

3.      Teresa Acs, Scotia Private Client Group

4.      Laura Addington, BMO Financial Group

5.      Advocacy Centre for the Elderly

6.      Ann Elise Alexander, CIBC Trust Corporation

7.      Alisha Alladina, Toronto Central Community Care Access Centre

8.      Dr. Federico Allodi, Psychiatrist

9.      Alternative Dispute Resolution Institute

10.   Tom Archer, Developmental Services Ontario, Niagara

11.   Peggy Armstrong, Grey Flag Campaign

12.   Michael Bach, Canadian Association for Community Living

13.   David Baker, BakerLaw

14.   Jan Barduzzi, Brain Injury Services

15.   Deborah Barker, Alzheimer Society of Grey-Bruce

16.   Janet Barry, Community Living Kingston and District

17.   Sally Bean, Sunnybrook Health Sciences Centre

18.   Jennifer Bell, Princess Margaret Cancer Centre

19.   Beth Bentley, Ongwanada

20.   Joanne Bertrand, Ontario Caregivers Coalition

21.   Lise Betteridge, Ontario College of Social Workers and Social Service Workers

22.   Dr. Raj Bhatla, Royal Ontario Hospital

23.   Sharon Biecks-Hangrow, Westpark Health Care Centre

24.   Elizabeth Birchall, Community Outreach Programs in Addictions

25.   Carol Blake, Advocate, Providence Care Mental Health Services Kingston

26.   Donna Broga, Lee Manor

27.   Barbara Bryan, Jarlette Health Services

28.   Kelley Bryan, Swadron Associates

29.   Katharine Buchan, Autism Society of Ontario

30.   Rob Buchanan, Legal Aid Ontario

31.   Daniel Buchman, University Health Network

32.   Charlotte Bumstead, Grey-Bruce Health Services

33.   Chris Burton, RBC Wealth Management Estate and Trust Services

34.   Dr. Clarissa Bush, Psychologist, Queensview Professional Services

35.   Elaine Calvert, Registered Nurses Association of Ontario

36.   Canadian Mental Health Association, Ontario Division, Executive Directors Network

37.   Canadian Mental Health Association, Ontario Division, Human Services and Justice Coordinating Committee

38.   Paul Cappuccio, Southlake Regional Health Services, ACTT/PACTT, Adult Outpatient Mental Health Services

39.   Linda Carey, Advocate, St. Joseph’s Health Care Hamilton

40.   Alexandra Carling-Rowland, College of Audiologists and Speech Language Pathologists

41.   Dr. Corine Carlisle, Centre for Addiction and Mental Health

42.   Elizabeth Carlton, Ontario Hospital Association

43.   Danielle Carnegie, Community Living Kingston and District

44.   Kelly Caswell, Toronto Central Community Care Access Centre

45.   Dr. Patricia Cavanagh, Centre for Addiction and Mental Health

46.   Jennifer Chambers, Centre for Addiction and Mental Health, Empowerment Council

47.   Dr. Ranjith Chandrasena, The Chatham-Kent Health Alliance

48.   Paula Chidwick, William Osler Health Systems

49.   Howard Chodos, Mental Health  Commission of Canada

50.   Bob Clark, Humber River Hospital

51.   Georgie Clarke, Concerned Friends of Ontario Citizens in Care Facilities

52.   John Clegg, Scotia Private Client Group

53.   Coalition on Alternatives to Guardianship

54.   Audrey Cole (advocate)

55.   Barbara Collier, Communications Disabilities Access Canada

56.   Nancy Cooper, Ontario Long-term Care Association

57.   Barry Corbin, Corbin Estate Law Professional Coorporation

58.   Jacques Côté, Barrister and Solicitor

59.   Johanne Curodeau, Association pour l’integration sociale d’Ottawa

60.   Eyitayo Dada, Barrister and Solicitor

61.   Margaret Dain, Rights Adviser, Providence Care Mental Health Services Kingston

62.   Carol Dalgado, CIBC Trust Corporation

63.   Dr. Christopher De Bono, Toronto Central Community Care Access Centre

64.   Pauline Diemert , Alzheimer Society Grey Bruce

65.   Cathy DiFonte, Advocate, Waypoint Centre for Mental Health Care, Penetanguishene

66.   Cynthia Dillon, Rights Adviser, Brockville Mental Health Centre

67.   Lisa Douris, SRT Medstaff

68.   Robin Rundle Drake, Advocate, Regional Mental Health Care London

69.   Diane Dyson, WoodGreen Community Services

70.   Dawn Eccles, Registered Nurse

71.   Dr. Virginia Edwards, Psychiatrist

72.   Duncan Embury, Neinstein & Associates

73.   Orville Endicott, Community Living Ontario

74.   Maureen Etkin, Elder Abuse Ontario

75.   Phyllis Fabra, Rights Adviser, Centre for Addiction and Mental Health

76.   Donna Fairley, Ontario Association of Residents Councils

77.   Guy Farrell, Farrell Law Group

78.   Dian Ferguson, CIBC Asset Management

79.   Dr. Ian Ferguson, Providence Health Care

80.   Anne Marie Fitzgerald, Ontario Works

81.   Elana Fleischman, Social Justice Tribunals Ontario

82.   Dr. Russell Fleming, Waypoint Centre for Mental Health Care

83.   Dr. Jennifer Fogarty, Psychologist, St. Joseph Healthcare London

84.   Dr. Jane Fogolin, Thunder Bay Regional Health Sciences Centre

85.   Angie Fong, BMO Harris Private Banking

86.   Andrea Foti, College of Physicians and Surgeons of Ontario

87.   Cristel Francis, Barrister and Solicitor

88.   Beth French, Brockville and District Association for Community Involvement

89.   Ryan Fritsch, Legal Aid Ontario

90.   Antonio Gallo, Joint Centre for Bioethics

91.   Nimali Gamage, Goddard, Gamage and Stephens LLP

92.   Meryl Zisman Gary, BakerLaw

93.   Dr. Rose Geist, Trillium Health Centre

94.   Dr. Maggie Gibson, Psychologist, St. Joseph Healthcare London

95.   Dr. Joan Gilmour, Osgoode Hall Law School

96.   Jan Goddard, Goddard, Gamage and Stephens

97.   Dianne Godkin, Trillium Health Partners

98.   Gabriella Golea, Centre for Addiction and Mental Health

99.   Bruce Graham, WoodGreen Community Services

100.                    Angela Grant, Advocate, Centre for Addiction and Mental Health

101.                    Dr. Adrian Grek, Mount Sinai Hospital & University of Toronto

102.                    Tom Groziner, RBC Wealth Management Estate and Trust Services

103.                    Michelle Hagar, Ontario Works

104.                    Professor Margaret Hall, Thompson Rivers University

105.                    Dr. Karen Hand, London Psychiatric Hospital

106.                    Mark Handelman, Whaley Estate Litigation

107.                    Professor Lynne Hanson, Queen’s University Law School

108.                    Louise Hanvey, Canadian Hospice Palliative Care Association

109.                    David Harvey, Alzheimer Society of Ontario

110.                    Alice Haveman, Counselling Services of Belleville and District

111.                    Ann Hester, Joint Centre for Bioethics

112.                    Rick Hill, Community Living Owen Sound and District

113.                    Ann Hilliard, Centre for Addiction and Mental Health

114.                    D’Arcy Hiltz, Hiltz LLP

115.                    Sandra Hood, Alzheimer Society Grey Bruce

116.                    Leah Hood, Grey-Bruce Health Services

117.                    Tracy Howell, PACE Independent Living

118.                    Elizabeth Hughes, Advocate, Brockville Mental Health Centre

119.                    Kimberley Ibarra, Joint Centre for Bioethics

120.                    Krista James, Canadian Centre for Elder Law

121.                    Colleen Kelly Jensen, Community Living Kingston and District

122.                    Danielle Joel, Borden Ladner Gervais

123.                    Kerri Joffe,  ARCH Disability Law Centre

124.                    Deborah Johnston, Chartwell Seniors Housing

125.                    Carolyn Jones, Barrister and Solicitor

126.                    Michelle Jorge, Jewell, Radimisis Jorge

127.                    Horace Joseph, ARCH Disability Law Centre

128.                    Daria Kagan, Kagan Law Firm

129.                    Ellen Kampf, Ontario College of Social Workers and Social Service Workers

130.                    Anya Kater, Ontario Human Rights Commission

131.                    Teri Kay, Ontario Network for the Prevention of Elder Abuse

132.                    Lana Kerzner, Barrister and Solicitor

133.                    Nabila Khan, ARCH Disability Law Centre

134.                    Reema Khawja, Ontario Human Rights Commission

135.                    Christa Korens, Centre for Addiction and Mental Health

136.                    Julian Kusek, Advocate, Waypoint Centre for Mental Health Care, Penetanguishene

137.                    Gordon Kyle, Community Living Ontario

138.                    Hilary Laidlaw, McCarthy Tétrault LLP

139.                    Liz Laird, Palliative Pain and Symptom Management Consultation Program Southwestern Ontario

140.                    Alastair Lamb, Ongwanada

141.                    Margaret Lambert, Upper Canada Lodge, Long Term Care Home

142.                    Dr. Larry Leach, Psychologist, Baycrest

143.                    Dee Lender, Ontario Association of Residents Councils

144.                    Nina Lester, Barrister and Solicitor

145.                    Brian Loza, BMO Mutual Funds

146.                    Dr. Lynn MacDonald, National Initiative for the Care of the Elderly

147.                    Jane Mackenzie, Rights Adviser, Lakehead Psychiatric Hospital

148.                    Faith Malcolm, Rights Adviser, Ontario Shores Centre for Mental Health Sciences

149.                    Gary Malkowski, Canadian Hearing Society

150.                    Lisa Manuel, Family Service Toronto

151.                    Chrystal Marshall, Rights Adviser, North Bay Regional Health Centre

152.                    Andrée-Anne Martel, Association des jurists d’expression francaise de l’Ontario

153.                    Nyranne Martin, Centre for Addiction and Mental Health

154.                    Paul McGarvey, Extend a Family Kingston

155.                    Sally McMackin, Toronto Central Community Care Access Centre

156.                    Elizabeth McNab, Ontario Coalition (Society) of Senior Citizen’s Organizations

157.                    Jane Meadus, Advocacy Centre for the Elderly

158.                    Douglas Melville, Ombudsman for Banking Services and Investments

159.                    Mental Health Legal Committee

160.                    Isfahan Merali, Consent and Capacity Board

161.                    Estrella Mercurio, ParaMed Home Health Care-Toronto Central

162.                    Suzanne Michaud, Royal Bank of Canada

163.                    Audrey Miller, Elder Caring

164.                    Anita Miller, Preferred Health Care Services

165.                    Edgar-Andre Montigny, ARCH Disability Law Centre

166.                    Dr. Elizabeth Moore, Psychologist, Providence Health Care

167.                    Dr. Rick Morris, College of Psychologists of Ontario

168.                    Katherine Mortimer, Ontario Seniors Secretariat

169.                    Rikin Morzaria, McLeish Orlando

170.                    Patricia Muldowney-Brook, Muldowney-Brooks Mediation Services

171.                    Kendra Naidoo, Centre for Addiction and Mental Health

172.                    Northumberland Community Legal Centre

173.                    Jordan Oelbaum, Schnurr Kirsh Schnurr Oelbaum Tator

174.                    Roy  O’Leary, Investors Group Trust

175.                    Catherine Olsiak, SimpsonWigle Law LLP

176.                    Ontario Brain Injury Association

177.                    Robyn Ord, Toronto Central Community Care Access Centre

178.                    Mr. Justice Edward Ormston, Consent and Capacity Board

179.                    Diane Parsons, Barrister and Solicitor

180.                    Stanley Pasternak, Law Offices of Stanley Pasternak

181.                    Ruth Patterson, York Durham Aphasia Centre

182.                    Lora Patton, York University, Consent and Capacity Board

183.                    Professor Patricia Peppin, Queen’s University Law School

184.                    Mercedes Peres, Mental Health Law Committee

185.                    Ivana Petricone, ARCH Disability Law Centre

186.                    Kathryn Pilkington, Ontario Association of Non-Profit Homes and Services for Seniors

187.                    Jeff Poirier, Ontario Human Rights Commission

188.                    Brendon Pooran, Barrister and Solicitor

189.                    Jennifer Pothier, Niagara North Legal Clinic

190.                    Steacey Powell, Community Living Kingston and District

191.                    Lisa Priolo, Advocate, Centre for Addiction and Mental Health

192.                    Alexander Procope, Swadron Associates

193.                    Lorraine Purdon, Association of Family  Councils

194.                    Sally Qi, Community Ethics Network

195.                    Archie Rabinowitz, Dentons Canada LLP

196.                    Steve Rastin, Rastin & Associates

197.                    Kevin Reel, Centre for Addiction and Mental Health

198.                    Anne Reynolds, BMO Harris Private Banking

199.                    Gail Riihimaki, Community Care Access Centre, Niagara Region

200.                    Margaret Rintoul, Blaney McMurtry LLP

201.                    Dr. Marcia Rioux, York University

202.                    Cherie Robertson, Ontario Human Rights Commission

203.                    Allan Rouben, Barrister and Solicitor

204.                    Carol Rudel, Seniors Community Programs, Niagara Region

205.                    Nancy Rushford, Alzheimer Society, Niagara Region

206.                    Barbara Russell, Centre for Addiction and Mental Health

207.                    Anna Ruto, Toronto Central Community Care Access Centre

208.                    Deb Ryckman, Community Living North Frontenac

209.                    Sheri Scott, Community Living Kingston and District

210.                    Greg Shaw, International Federation on Ageing

211.                    Jenny Shickluna, Niagara Region Seniors Services

212.                    Roslyn Shields, Centre for Addiction and Mental Health

213.                    Dr. Gerald Shugar, Centre for Mental Health and Addiction

214.                    Doreen Simenov, Canadian Mental Health Association

215.                    Ruth Sommers, St. Joseph’s Health Care Hamilton

216.                    Dean Lorne Sossin, Osgoode Hall Law School

217.                    Margaret Spoelstra, Autism Ontario

218.                    Peter Sproul, Community Living Kingston and District

219.                    Wade Stevenson, Rights Adviser, Waypoint Centre for Mental Health Care, Penetanguishene

220.                    Ebony St. Rose, Centre for Addiction and Mental Health

221.                    Laurel Stroz , Toronto Central Community Care Access Centre

222.                    Stanley Stylianos, Psychiatric Patient Advocacy Office

223.                    Myra Sugar, Kerry’s Place

224.                    Professor Doug Surtees, University of Saskatchewan College of Law

225.                    Marshall Swadron, Swadron Associates

226.                    Georgia Swan, HGR Graham Partners LLP

227.                    Irina Sytcheva, Schizophrenia Society

228.                    Anita Szigeti, Anita Szigeti Advocates

229.                    Shaheynoor Talukder, Barrister and Solicitor

230.                    Marie Taylor, Advocate, Ontario Shores Centre for Mental Health Sciences

231.                    Kim Thompson, Rights Adviser, Regional Mental Health Care London

232.                    Rachel Thomson, Community Care Access Centre Southwest

233.                    Dr. Michele Tremblay, Northern Ontario Francophone Psychiatric Program

234.                    Matthew Trennum, Privacy by Design, Niagara Region

235.                    Kate Tschakovsky, Centre for Addiction and Mental Health

236.                    Tom Turner, Developmental Services of Leeds and Grenville

237.                    Mary Beth Valentine, Retirement Homes Regulatory Authority

238.                    Frank Wagner, Joint Centre for Bioethics

239.                    Judith Wahl, Advocacy Centre for the Elderly

240.                    Professor Shirley Wales, Humber College

241.                    Dean Walsh, Community Living North Frontenac

242.                    Laura Watts, Canadian Centre for Elder Law

243.                    Graham Webb , Advocacy Centre for the Elderly

244.                    Joanna Weiss, Anita Szigeti Advocates

245.                    Kimberly Whaley, Whaley Estate Litigation

246.                    Carla Whillier, Barrister and Solicitor

247.                    Krista Whittard, Niagara Region Mental Health

248.                    Ruth Wilcock, Ontario Brain Injury Association

249.                    Kim Wilson, Canadian Coalition for Seniors Mental Health

250.                    Dianne Wintermute, ARCH Disability Law Centre

251.                    Christine Wray, Toronto Central Community Care Access Centre

252.                    David Wright, Human Rights Tribunal of Ontario

253.                    Anna Zachariah , Ontario Coalition (Society) of Senior Citizen’s Organizations

254.                    Joanna Zymont, Centre for Addiction and Mental Health


B.    Private Individuals

 In accordance with our mandate, and reflecting the nature of this project, the LCO made efforts throughout to not only make participation accessible to individual older adults, but to actively encourage their participation.

The LCO received input from over 300 individuals over the course of this project. This includes:

·       212 responses to the survey questionnaires: 109 from individuals directly affected and 103 from persons providing decision-making assistance,

·       close to 100 individuals participating in the LCO’s eleven focus groups for persons directly affected or family members,

·       several formal interviews conducted by LCO staff,

·       several individuals who contacted us via phone calls, emails, written submissions or online comments.

In accordance with the LCO’s Privacy Policy, the names of contributing individuals are not listed here. However, the participation of these individuals fundamentally shaped this project throughout, and the LCO wishes to express our gratitude to them for sharing their expertise and experiences with us.


C.    Commissioned Research Papers

 The LCO issues a call of the preparation of research papers in particular subjects relevant to a project. It relies on these papers in the same way as any research. The papers do not necessarily reflect the LCO’s views.

Advocacy Centre for the Elderly and Dykeman Dewhirst O’Brien LLP: Health Care Consent and Advance Care Planning: Standards and Supports, online at:  http://lco-cdo.org/en/capacity-guardianship-commissioned-paper-ace-ddo.

ARCH Disability Law Centre: Decisions, Decisions: Promoting And Protecting The Rights Of Persons With Disabilities Who Are Subject To Guardianship, online at: http://lco-cdo.org/en/capacity-guardianship-commissioned-paper-arch.

Canadian Centre for Elder Law: Understanding the Lived Experience of Assisted and Supported Decision-making in Canada, online at: http://lco-cdo.org/en/capacity-guardianship-commissioned-paper-ccel. 

Dr. Bonnie Lashewicz: Understanding and Addressing Voices of Adults with Disabilities Within Their Family Caregiving Contexts: Implications for Legal Capacity, Decision-making and Guardians online: http://lco-cdo.org/en/capacity-guardianship-commissioned-paper-lashewicz.

The following papers were also of assistance to the LCO:

Dr. Vahe Kehyayan and Dr. John P. Hirdes: Socio-Demographic, Clinical and Functional Characteristics of Persons Lacking Legal Capacity Across the Continuum of Health Care Settings in Ontario, Interim Paper, November 2013, unpublished.

Lana Kerzner and Michael Bach: Fulfilling the Promise: ‘Alternative Courses of Action’ under the Substitute Decisions Act, Interim Paper, March 2014, unpublished. 




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