Endnotes2017-03-03T21:28:05+00:00

[1] Niamh Mulcahy, “Narrating Developmental Disability: Researchers, Advocates, and the Creation of an Interview Space in the Context of University-Community Partnerships” (2012) 11:2 International Journal of Qualitative Methods 165. 

[2] Val Williams & Carol Robinson, “More than One Wavelength: Identifying, Understanding and Resolving Conflicts of Interest between People with Intellectual Disabilities and their Family Carers” (2001) 14 Journal of Applied Research in Intellectual Disabilities 30 [Williams & Robinson].

[3] Alejandro Portes, “Social Capital: Its Origins and Applications in Modern Sociology” (1998) 24 Annual Sociology 1.

[4] Bruce Uditsky, “From Integration to Inclusion: The Canadian Experience” in Roger Slee, eds., Is There a Desk With my Name On It: The Politics of Integration (London: The Falmer Press,1993) 82.

[5] Amy C Sousa, “From Refrigerator Mothers to Warrior-Heroes: The Cultural Identity Transformation of Mothers Raising Children with Intellectual Disabilities” (2011) 34:2 Symbolic Interaction 220.

[6] Nancy Guberman, “Family Caregiving: Is Love Enough?” in Pam Orzeck, Nancy Guberman & Lucy Barylak, eds, Responding Creatively to the Needs of Caregivers (Montreal: Éditions Saint-Martin, 2001) 121. 

[7]Michele Barrett & Mary McIntosh, The Anti-Social Family (London: Verso, 1982).

[8] Janet Kirkham, Yassaman Imani & Moira Calveley, “Reflecting on Reflexivity: A Complexity Inspired Approach to Research Paper Presentation” (Paper presented at the 3rd International Conference on Professional Doctorates, 2 April 2012) [unpublished]; Laura R Mooney & Bonnie Lashewicz, “Voices of Care and Support for Adults with Disabilities and/or Mental Health Issues in Western Canada: What do families and agencies need from each other?” Health & Social Care in the Community [forthcoming in 2013].

[9] Steven Barrow & Roger A Harrison, “Unsung Heroes Who Put their Lives at Risk? Informal Caring, Health and Neighborhood Attachment” (2005) 27:3 Journal Public Health 292 [Barrow & Harrison].

[10] Williams & Robinson, note 2.

[11] Jih-Yuan Chen & Mary-Jo Clark, “Family Function in Families of Children with Duchenne Muscular Dystrophy” (2007) 30:4 Family & Community Health: The Journal of Health Promotion & Maintenance 296 [Chen & Clark].

[12] Se Kwang Hwang & Helen Charnley, “Making the Familiar Strange and Making the Strange Familiar: Understanding Korean Children’s Experiences of Living with an Autistic Sibling” (2010) 25:5 Disability & Society 579; Marcia Van Riper, Carol Ryff & Karen Pridham, “Parental and Family Well‐being in Families of Children with Down Syndrome: A Comparative Study” (1992) 15:3 Research in Nursing & Health 227.

[13] Chen & Clark, note 11; Julie Poehlmann et al, “Family Experiences Associated with a Child’s Diagnosis of Fragile X or Down syndrome: Evidence for Disruption and Resilience” (2005) 43:4 Mental Retardation 255.

[14] Barrow & Harrison, note 9.

[15] Sana Loue et al, “Caring for an Adult Child With Cognitive Disabilities: Meeting the Dual Needs of an Adult and Child” (2006) 7:4 Care Management Journals 191.

[16] Timothy B Kelly & Nancy P Kropf, “Stigmatized and Perpetual Parents: Older Parents Caring for Adult Children with Life-Long Disabilities” (1995) 24:1-2 Journal of Gerontological Social Work 3.

[17] Mayer Shevin & Nancy K. Klein, “The Importance of Choice-Making Skills for Students with Severe Disabilities” (1984) 9:3 Journal of the Association for Persons with Severe Handicaps 159.

[18] Gloria Kishi et al, “Daily Decision-making in Community Residences: A Social Comparison of Adults with and without Mental Retardation” (1988) 90 American Journal of Mental Retardation 430.

[19] Tim Booth & Wendy Booth, “Sounds of Silence: Narrative Research with Inarticulate Subjects” (1996) 11:1 Disability & Society 55 [Booth & Booth]; Gillian Pascall & Nicola Hendey, “Disability and Transition to Adulthood: The Politics of Parenting” (2004) 24:2 Critical Social Policy 165; Andrew Power, “Caring for Independent Lives: Geographies of Caring for Young Adults with Intellectual Disabilities” (2008) 67 Social Science & Medicine 834.

[20] Al Etmanski, Jackie Collins & Vickie Cammack, Safe and Secure: Six Steps to Creating a Good Life for People with Disabilities 1st ed. (Burnaby: Planned Lifetime Advocacy Network, 2003) [Etmanski].

[21] Etmanski, note 20.

[22] Mark Baldwin, “Is Assessment Working? Policy and Practice in Care Management” (1996) 8 Practice: Social Work in Action 53; Amy M Luck & Miranda L Rose, “Interviewing People with Aphasia: Insights into Method Adjustments from a Pilot Study” (2007) 21:2 Aphasiology 208; Williams & Robinson, note 2.

[23] Catherine Thornberry & Karin Olson, “The Abuse of Individuals with Developmental Disabilities” (2005) 33:1-2 Developmental Disabilities Bulletin 1.

[24] Williams & Robinson, note 2.

[25] Laura Bowey & Alex McGlaughlin “Older Carers of Adults with a Learning Disability Confront the Future: Issues and Preferences in Planning” (2007) 37:1 British Journal of Social Work 39 [Bowey & McGlaughlin]; Claire Croteau & Guylaine LeDorze, “Overprotection, ‘Speaking For” and Conversational Participation: A Study of Couples with Aphasia” (2007) 20:2-4 Aphasiology 327.

[26] Bowey & McGlaughlin, note 25; Williams & Robinson, note 2.

[27] Ralf D Stacey & Douglas Griffin, eds, A Complexity Perspective on Researching Organizations: Taking Experience Seriously (New York: Routledge, 2005); Jonathan Potter & Alexa Hepburn, “Qualitative Interviews in Psychology: Problems and Possibilities” 2005) 2:4 Qualitative Research in Psychology 281 [Potter & Hepburn].

[28] Catherine Marshall & Gretchen B. Rossman. Designing Qualitative Research, 4th ed. (Newbury Park: Sage, 2006).

[29] Bruce Berg, Qualitative Research Methods for the Social Sciences, 5th ed. (Boston: Pearson Education, 2004).

[30] Harriet P Lefley & Agnes B Hatfield, “Helping Parental Caregivers and Mental Health Consumers Cope With Parental Aging and Loss” (1999) 50:3 Psychiatric Services 369.

[31] Potter & Hepburn, note 27.

[32] Joan M. Patterson, “Understanding Family Resilience” (2002) 58:3 Journal of Clinical Psychology 233.

[33] Stina Orseland et al, “Nurses as Guests or Professionals in Home Health Care” (2008) 15:3 Nursing Ethics 371.

[34] Janet Badger et al, “eLearning: Mental Capacity Act”, online: Social Care Institute for Excellence, http://www.scie.org.uk/publications/elearning/mentalcapacityact/index.asp.

[35] David Beukelman & Pat Mirenda, Augmentative and Alternative Communication: Supporting Children and Adults with Complex Communication Needs, 4th ed. (Baltimore: Paul H. Brookes Publishing Co, 2013).

[36] Ruth Dalemans et al, “Facilitating the Participation of People with Aphasia in Research: A Description of Strategies” (2009) 23:10 Clinical Rehabilitation 948; Stephanie J. Brewster, “Putting Words into Their Mouths? Interviewing People with Learning Disabilities and Little/No Speech” (2004) 32:4 British Journal of Learning Disabilities 166.

[37] Booth & Booth, note 19.

[38] Blake Poland & Ann Pederson, “Reading Between the Lines: Interpreting Silences in Qualitative Research” (1998) 4:2 Qualitative Inquiry 293.

[39] Patrick J. Doyle et al, “Linguistic Validation of Four Parallel Forms of a Story Retelling Procedure” (2000) 14:5-6 Aphasiology 537.

 

 

 

Previous
First Page
Table of Contents